More on Poppy

We've now had Poppy home with us for two whole months! 

And she hasn't had to be admitted for anything,

which is big cause for celebration, I think.

She has had a few setbacks, like needing a blood transfusion in

December, but it went well and we haven't noticed any complications.

And one of these days she is supposed to start weekly iron infusions

(iron through an IV) so she shouldn't need another transfusion, but

we are still waiting for the call that said everything is set and here's when

she needs to come in, but we haven't had that call yet.

It's pretty frustrating, because her iron count keeps dropping and if she doesn't get

an infusion in the next week, I think she'll need another blood transfusion.

Which we were really hoping to avoid.

We also have a new home care nurse.  I was sad to see the last one go - she

was great.  And my first experience with our new one was less than

stellar, but when she came yesterday, I liked her more.  So maybe we 

were both having a bit of an off day that first visit.

The home care nurse comes once a week to do a blood draw and

to change the dressing on Poppy's broviac line.

It's nice that I don't need to do that - I am willing to if we are told

by our insurance company or whoever makes that decision, and

I feel confident that I can do it if it was an emergency situation,

but I am very thankful that I don't have to for now.

It's nice to just be the one to keep Poppy preoccupied and be on

binky duty.  She is really good at keeping still and being

happy whenever she's had a home care visit, so I mainly just 

keep her arms away from her chest when needed & pop the binky back in.

She has also started physical therapy.  We have two different places helping her.

One is through the school district.  Because of her vision problems,

she qualifies for a vision teacher to come out twice a month and help

her learn things.  We've only had one visit, and it was mainly an 

introductory thing.  But her other PT is through the hospital.

She has an irregularly shaped head, so she qualifies to have some visits for a few months.

The goal is to help her with muscle control so she can be mobile

and have her head reshape so we can avoid needing a helmet.

That lady was great.  And Poppy tolerated the work very well.

Although she starts to cry anytime I start to put her in the positions

I was asked to work with her with - even before I do anything else, just getting

her ready.  So I still do it, but we are slowly building up.

We had a great Christmas break - and pretty much finished remodeling the kitchen.

I took some pictures, so hopefully soon I will get them up on here.

I LOVE it.  The kitchen feels so different and I feel really good when I go in there.

And I have more of a desire to keep it clean and nice.